Family support on augmentative and alternative communication (AAC) for raising communication skills of children with Angelman Syndrome - preliminary case study with 6 families

Ágnes Havasi; Brigitta Miksztai-Réthey; Réka Kádár

doi:10.56663/rop.v11i1.36

Authors

Ágnes Havasi ELTE University, Barczi Gusztav Faculty of Special Needs Education, Budapest, Hungary
Brigitta Miksztai-Réthey ELTE University, Barczi Gusztav Faculty of Special Needs Education, Budapest, Hungary
Réka Kádár Angelman Foundation, Budapest, Hungary

DOI:

https://doi.org/10.56663/rop.v11i1.36

Keywords:

assistive technology, reading skills, intellectual disability, special educational needs

Abstract

Angelman Syndrome (AS) is a genetic disorder caused by a lack of expression of the UBE3A gene on the 15th chromosome. AS exhibits a broad range of difficulties, including speech and communication impairment and no or minimal use of words. Augmentative and alternative communication (AAC) tools are widely used in AS for raising communication skills. We explored (1) the usage of AAC at home, and (2) family support to raise the communication skills of six children with AS.

References

Alvares, R., & Downing, S. (1998). A survey of expressive communication skills in children with Angelman syndrome. American Journal of Speech-Language Pathology, 7, 13–24.

American Speech-Language-Hearing Association (ASHA) (2005). Roles and responsibilities of speech- language pathologists with respect to augmentative and alternative communication: position statement. ASHA Supplement. http://www.asha.org/policy/ps2005-00113.htm [2014-05-20]

Beukelman, D.R. & Mirenda, P. (2014). Augmentative Alternative Communication. Supporting children and adults whit complex communication needs. Paul H. Brookers Publishing. Baltimore, Maryland.

Calculator, S. (2014). Parents’ perceptions of communication patterns and effectiveness of use of augmentative and alternative communication systems by their children with Angelman syndrome. American Journal of Speech-Language Pathology, 23, 562–573. doi:10.1044/2014_AJSLP-13-0140

Calculator, S. N. (2013). Use and acceptance of AAC systems by children with Angelman syndrome.Journal of Applied Research in Intellectual Disabilities, 26(6), 557-567.

Calculator, S. N. (2015). AAC Considerations for Individuals With Angelman Syndrome. SIG 12 Perspectives on Augmentative and Alternative Communication, 24(3), 106-113.

Calculator, S. N. (2016). Description and Evaluation of a Home-Based, Parent-Administered Program for Teaching Enhanced Natural Gestures to Individuals With Angelman Syndrome. American Journal of Speech-Language Pathology, 25(1), 1-13.

Didden, R., Korzilius, H. P. L. M., Duker, P., & Curfs, L. M. G. (2004). Communicative functioning in individuals with Angelman syndrome: A comparative study. Disability and Rehabilitation, 26(21- 22), 1263-1267.

Rowland, C. (1996). Communication Matrix. The Callier-Azusa scale (G). Dallas: Callier Center, University of Texas at Dallas On line verision 2010: www.communicationmatrix.org

Williams, C. A. (1995). Angelman syndrome: consensus for diagnostic criteria. American journal of medic genetics, 56(2), 237-238.